Ethan Update

Ethan, Ethan, Ethan.... The kid is such a trooper. So since I last updated everyone on Ethan he has had another IVIG infusion, they found a significant amount if blood in his urine, was on "lock down" to avoid him getting sick after finding a lung infection, and he has unexplained bleeding form his anus. They think Ethan has Alport Disease which will explain the kidney problems but not everything else. Alport Disease runs on my Moms side of the family and i am a carrier for the disease. Before Daddy gets home he will have another IVIG infusion, meet with pulmonary again for a complete pulmonary workup, meet with ophthalmology, have a kidney biopsy, and chemo (Ritux) infusion. He is being super tough, back on a low dose of steroids, and no longer on lock down. He has a team of half a dozen docs at Vandy now, all of which are amazing.